Starting Out With More to Come Shortly

I am new to this blog thing although it was been a thought for a long time. The goal of this project is to share our knowledge and experiences that we have gained over the years with others to give insight into what it is like to have a child with a congenital heart defect (CHD). The other aspect of sharing is to hopefully help others going through similar situations and navigate life as a parent of a CHD child.

As this is still a work in progress I hope to have the more post up in the next few weeks. Some of the topics I would like cover include but are not limited to:

• The pregnancy
• Delivery and Diagnosis
• Life in the hospital
• Living at Ronald McDonald House
• Discharge and going home
• Home health
• In home nursing
• Life with a CHD child
• Life for other members of the family including other kids
• Insurance

If you have questions, concerns or would like to share info with us the best way to do that is through email at lifebetweenbeats@gmail.com or social media on Facebook, Twitter, or Instagram, they are linked at the bottom of the website.

Thank you for taking the time to come to the blog. Feel free to spread the word about it as we want to help as many families as we can.